‘The own’ and ‘the wise’ as social support for older people living with HIV in the United Kingdom

Rosenfeld, D. and Anderson, J. 2020. ‘The own’ and ‘the wise’ as social support for older people living with HIV in the United Kingdom. Ageing and Society. 40 (1), pp. 188-204. https://doi.org/10.1017/S0144686X18000909

Title‘The own’ and ‘the wise’ as social support for older people living with HIV in the United Kingdom
TypeJournal article
AuthorsRosenfeld, D.
Anderson, J.
Abstract

As the HIV population ages, how the ageing and HIV experiences intersect to shape the lives of older people living with HIV (PLWH) becomes an increasingly pressing question. This multi-method study investigated social support, mental health and quality of life among 100 older PLWH in the United Kingdom. Drawing on data from three focus groups and 74 life-history interviews with older (aged 50+) White men who have sex with men (MSM), and Black African and White heterosexual men and women, living with HIV, we explore participants’ distinctions between, evaluations of and access to sources of social support. Participants distinguished between support from the HIV-negative (Goffman's ‘the own’) and experientially based support from other PLWH (Goffman's ‘the wise’), and viewed the former, while valuable, as needing to be supplemented by the latter. Furthermore, access to experientially based support varied across participant groups, whose communities had different histories with HIV/AIDS and thus different degrees of knowledge about HIV and avenues for connecting to other PLWH. Thus, social support among older PLWH cannot be neatly divided into ‘formal’ and ‘informal’ domains, or fully appreciated by applying traditional social support measures, including, in the context of health conditions, ‘peer support’ created through formal service organisations. Rather, older PLWH's own distinctions and evaluations better illuminate the complexities of social support in the context of ageing with HIV.

Keywordssocial support
HIV
Goffman
JournalAgeing and Society
Journal citation40 (1), pp. 188-204
ISSN0144-686X
Year2020
PublisherCambridge University Press
Accepted author manuscript
Digital Object Identifier (DOI)https://doi.org/10.1017/S0144686X18000909
Publication dates
Published online02 Aug 2018
Published in printJan 2020

Related outputs

The Changing Narratives of Death, Dying, and HIV in the United Kingdom
Catalan, J., Ridge, Damien T., Cheshire, A., Hedge, B. and Rosenfeld, D. 2020. The Changing Narratives of Death, Dying, and HIV in the United Kingdom. Qualitative Health Research. 30 (10), pp. 1561-1571. https://doi.org/10.1177/1049732320922510

Ageing with HIV
Rosenfeld, D., Ridge, Damien T. and Catalan, J. 2019. Ageing with HIV. in: Westwood, S. (ed.) Ageing, Diversity and Equality: Social Justice Perspectives London Routledge. pp. 259-275

What influences quality of life in older people living with HIV?
Catalan, J., Tuffrey, V., Ridge, Damien T. and Rosenfeld, D. 2017. What influences quality of life in older people living with HIV? AIDS Research and Therapy. 14 (22) 22. https://doi.org/10.1186/s12981-017-0148-9

Age and Life Course Location as Interpretive Resources for Decisions Regarding Disclosure of HIV to Parents and Children: Findings from the HIV and Later Life Study
Rosenfeld, D., Ridge, Damien T., Catalan, J. and Delpech, V. 2016. Age and Life Course Location as Interpretive Resources for Decisions Regarding Disclosure of HIV to Parents and Children: Findings from the HIV and Later Life Study. Journal of Aging Studies. 38, pp. 81-91. https://doi.org/10.1016/j.jaging.2016.06.001

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