| Abstract | The research is focused on a patient-based social media movement which advocated for clinical research into a discovery rejected by key elements of the medical establishment. This thesis aims to examine how social media interactions empowered patients, what motivated them to become a movement, and the elements which propelled the movement to create alternative patient associations.
This research comprises 62 individual, in-person, audio-recorded interviews with movement activists, and the researcher’s autoethnography as the founder and administrator of the movement’s Facebook Page. These methods are triangulated with academic publications, newspaper and television news, as well as other publicly-sourced materials relating to the case study.
The research finds that while the movement’s activities, from planning through protest, occurred solely on the streets of social media, activists experienced the same passion and urgency as the academic literature has described for on-the-street activists. That is, social media paralleled the “real streets” as a forum for the movement’s core activities. The research further finds that the traditional patient associations’ initial strategy of stonewalling the contested discovery was undercut by the momentum of the social media movement’s activities. They subsequently sought to quell the movement by lambasting social media as well as deploying a co-optation strategy, as described by the activists.
To conclude, social media function as streets and city halls where decisions taken can be implemented in the real world and permit geographically distributed as well as differently abled people to gather in significant numbers. The space where human interactions can foster social life and deepen personal emotional relations could be named the space of humanity. This is the space where timeless time and the realities of the counter power experience can happen, independent of whether that space is surrounded by real or digital bricks. |
|---|