|Title||Development of Measure Yourself Concerns and Wellbeing for informal caregivers of people with cancer – a multicentred study|
Purpose: Measure Yourself Concerns and Wellbeing (MYCaW) is a validated person-centred measure of the concerns and wellbeing of people affected by cancer. Research suggests that the concerns of informal caregivers (ICs) are as complex and severely rated as people with cancer, yet MYCaW has only been used to represent cancer patients’ concerns and wellbeing. This paper reports on the development of a new qualitative coding framework for MYCaW to capture the concerns of ICs, to better understand the needs of this group.
Methods: This multicentred study involved collection of data from ICs receiving support from two UK cancer support charities (Penny Brohn UK and Cavendish Cancer Care). Qualitative codes were developed through a detailed thematic analysis of ICs’ stated concerns.
|Keywords||Supporter; carers; cancer, MYCaW, concerns, person centred, long term conditions, informal caregiver|
|Journal||Supportive Care in Cancer|
|Journal citation||27 (5), pp. 1901-1909|
|Digital Object Identifier (DOI)||https://doi.org/10.1007/s00520-018-4422-8|
|Published online||11 Sep 2018|
|Published in print||May 2019|
|License||CC BY-NC 4.0|