Barriers to recruiting and retaining psychosis carers: a case study on the lessons learned from the Caring for Caregivers (C4C) trial

Hazell, C.M., Jones, C.J., Pandey, A and Smith, H.E 2019. Barriers to recruiting and retaining psychosis carers: a case study on the lessons learned from the Caring for Caregivers (C4C) trial. BMC Research Notes. 12, p. 810 810. https://doi.org/10.1186/s13104-019-4832-9

TitleBarriers to recruiting and retaining psychosis carers: a case study on the lessons learned from the Caring for Caregivers (C4C) trial
TypeJournal article
AuthorsHazell, C.M., Jones, C.J., Pandey, A and Smith, H.E
Abstract

Objective: Carers play an important role within the UK mental health system. Those carers who support persons with psychosis can experience a reduction in their own physical and mental health. As part of the Caring for Caregivers (C4C) trial, we piloted a writing intervention (Positive Written Disclosure) that has been shown to improve wellbeing in other populations. Although we reached our recruitment target, we encountered several barriers that made recruitment slower than anticipated. This paper synthesises the process data collected during the C4C trial that relates to the barriers to recruiting and retaining psychosis carers.
Results: We encountered four main carer-specifc barriers to the recruitment and retention of participants in our study. These were: (1) poor relationship with mental health clinicians, (2) conficting with the care recipient’s (CR) needs, (3) lack of spare time, and (4) lack of services for mental health carers. The interventions to assist carers need to be informed by robust evidence and this requires trials that reach their recruitment targets. By sharing our practical experiences other researchers and clinicians can modify their practices to minimise recruitment difculties and delay.

Article number810
JournalBMC Research Notes
Journal citation12, p. 810
ISSN1756-0500
Year2019
PublisherBMC
Publisher's version
License
CC BY 4.0
File Access Level
Open (open metadata and files)
Digital Object Identifier (DOI)https://doi.org/10.1186/s13104-019-4832-9
Publication dates
Published17 Dec 2019

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