A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers

Hicks, B., Read, S., Hu, B., Wittenberg, R., Grahamslaw, A., Karim, A., Martin, E., Nuzum, E., Reichental, J., Russell, A., Siddle, E., Storey, E., Tipping, E., Baxter, K., Birks, Y., Brayne, C., Brimblecombe, N., Dangoor, M., Dixon, J., Gridley, K., Harris, P.R., Knapp, M., Miles, E., Perach, R., Robinson, L., Rusted, J., Stewart, R., Thomas, A.J. and Banerjee, S. 2022. A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers. Alzheimer's & Dementia: Translational Research & Clinical Interventions. 8 (1) e12236. https://doi.org/10.1002/trc2.12236

TitleA cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers
TypeJournal article
AuthorsHicks, B., Read, S., Hu, B., Wittenberg, R., Grahamslaw, A., Karim, A., Martin, E., Nuzum, E., Reichental, J., Russell, A., Siddle, E., Storey, E., Tipping, E., Baxter, K., Birks, Y., Brayne, C., Brimblecombe, N., Dangoor, M., Dixon, J., Gridley, K., Harris, P.R., Knapp, M., Miles, E., Perach, R., Robinson, L., Rusted, J., Stewart, R., Thomas, A.J. and Banerjee, S.
Abstract

Introduction
COVID-19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life.

Methods
In a UK cohort study, pre- and post-pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life.

Results
Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life.

Discussion
Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.

Article numbere12236
JournalAlzheimer's & Dementia: Translational Research & Clinical Interventions
Journal citation8 (1)
ISSN2352-8737
Year2022
PublisherAlzheimer's Association
Publisher's version
License
CC BY 4.0
File Access Level
Open (open metadata and files)
Digital Object Identifier (DOI)https://doi.org/10.1002/trc2.12236
Publication dates
Published02 May 2022

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