Using digital technologies to facilitate social inclusion during the COVID-19 pandemic: Experiences of co-resident and non-co-resident family carers of people with dementia from DETERMIND-C19

Hicks, B., Gridley, K., Dixon, J., Baxter, K., Birks, Y., Colclough, C., Karim, A., Perach, R., Moseley, E., Russell, A., Sondh, H.K., Storey, B., Tipping, E., Mc Ardle, R., Donaghy, P., Dangoor, M., Miles, E., Robinson, L., Rusted, J., Waine, H., Wheatly, K. and Banerjee, S. 2023. Using digital technologies to facilitate social inclusion during the COVID-19 pandemic: Experiences of co-resident and non-co-resident family carers of people with dementia from DETERMIND-C19. International Journal of Geriatric Psychiatry. 38 (2).

TitleUsing digital technologies to facilitate social inclusion during the COVID-19 pandemic: Experiences of co-resident and non-co-resident family carers of people with dementia from DETERMIND-C19
TypeJournal article
AuthorsHicks, B., Gridley, K., Dixon, J., Baxter, K., Birks, Y., Colclough, C., Karim, A., Perach, R., Moseley, E., Russell, A., Sondh, H.K., Storey, B., Tipping, E., Mc Ardle, R., Donaghy, P., Dangoor, M., Miles, E., Robinson, L., Rusted, J., Waine, H., Wheatly, K. and Banerjee, S.
Abstract

Background

The COVID-19 pandemic triggered rapid and unprecedented changes in the use of digital technologies to support people's social inclusion. We examined whether and how co-resident and non-co-resident family carers of people with dementia engaged with digital technologies during this period.

Methods

Throughout November 2020-February 2021, we interviewed 42 family carers of people with dementia from our DETERMIND-C19 cohort. Preliminary analysis was conducted through Framework analysis, followed by an inductive thematic analysis.

Findings

Digital technologies served as a Facilitator for social inclusion by enabling carers to counter the effects of the differing restrictions imposed on them so they could remain socially connected and form a sense of solidarity, access resources and information, engage in social and cultural activities and provide support and independence in their caring role. However, these experiences were not universal as carers discussed some Challenges for tech inclusion, which included preferences for face-to-face contact, lack of technological literacy and issues associated with the accessibility of the technology.

Conclusion

Many of the carers engaged with Information and Communication Technologies, and to a lesser extent Assistive Technologies, during the pandemic. Whilst carers experienced different challenges due to where they lived, broadly the use of these devices helped them realise important facets of social inclusion as well as facilitated the support they provided to the person with dementia. However, to reduce the ‘digital divide’ and support the social inclusion of all dementia carers, our findings suggest it is essential that services are attuned to their preferences, needs and technological abilities.

JournalInternational Journal of Geriatric Psychiatry
Journal citation38 (2)
ISSN1099-1166
Year2023
PublisherWiley
Publisher's version
License
CC BY 4.0
File Access Level
Open (open metadata and files)
Web address (URL)https://onlinelibrary.wiley.com/doi/full/10.1002/gps.5886?casa_token=7SmkWH1W8QwAAAAA%3Avv3vhDCIXRUS2iB_usdQwpD7NPbmD7IakEqy1Df6eQVqoqpDDF3O1Etwe5FelA5i7Qb39CDFCgLn_oau
Publication dates
Published03 Feb 2023

Related outputs

Preprint: Individual differences in sharing false political information on social media: deliberate and accidental sharing, motivations and positive schizotypy
Tom Buchanan, Rotem Perach, Deborah Husbands, Amber Tout, Ekaterina Kostyuk, James Kempley and Laura Joyner 2024. Preprint: Individual differences in sharing false political information on social media: deliberate and accidental sharing, motivations and positive schizotypy. OSF Preprints. https://doi.org/10.31219/osf.io/hg9qb

Why do people share false political information online?
Buchanan, T., Perach, R. and Husbands, D. 2023. Why do people share false political information online? Crest Security Review. 17, pp. 14-15.

Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers
Read, S., Hicks, B., Budden, E., Douglas, J., Grahamslaw, A., Herrero, E., Joseph, G., Kirkup, C., Pusey, M., Perach, R. and Banerjee, S. 2023. Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers. Age and Ageing. 53 (1). https://doi.org/10.1093/ageing/afad233

Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic
Gridley, K., Dixon, J., Hicks, B., Birks, Y., Baxter, K., Miles, E., Robinson, L., Perach, R. and Banerjee, S. 2023. Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic. Dementia. 22 (8), pp. 1718-1737. https://doi.org/10.1177/14713012231190585

Why Do People Share Political Information and Misinformation Online? Developing a Bottom-Up Descriptive Framework
Perach, R., Joyner, L., Husbands, D. and Buchanan, T. 2023. Why Do People Share Political Information and Misinformation Online? Developing a Bottom-Up Descriptive Framework. Social Media + Society. 9 (3). https://doi.org/10.1177/20563051231192032

Can group-based strategies increase community resilience? Longitudinal predictors of sustained participation in Covid-19 mutual aid and community support groups
Perach, R., Fernandes‐Jesus, M., Miranda, D., Mao, G., Ntontis, E., Cocking, C., McTague, M., Semlyen, J. and Drury, J. 2023. Can group-based strategies increase community resilience? Longitudinal predictors of sustained participation in Covid-19 mutual aid and community support groups. Journal of Applied Social Psychology. 53 (11), pp. 1059-1075. https://doi.org/10.1111/jasp.12995

Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic
Colclough, C., Miles, E., Rusted, J.M., Perach, R., Hicks, B., Dixon, J., Dangoor, M., Gridley, K., Birks, Y., Donaghy, P., Mcardle, R., Moseley, E., Sondh, H.K., Banerjee, S. and for the DETERMIND team 2023. Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic. Dementia. 22 (6), pp. 1205-1316. https://doi.org/10.1177/14713012231173812

Associations between sleep variables and ostensibly paranormal experiences and paranormal beliefs: A scoping review
Rauf, B., Perach, R., Madrid-Valero, J.J., Denis, D., Sharpless, B.A., Farron, H., French, C.C. and Gregory, A. 2023. Associations between sleep variables and ostensibly paranormal experiences and paranormal beliefs: A scoping review. British Journal of Psychology. 114 (4), pp. 797-818. https://doi.org/10.1111/bjop.12655

Isolated Sleep Paralysis: Clinical Features, Perception of Aetiology, Prevention and Disruption Strategies in a Large International Sample
Rauf, B., Sharpless, B. A., Denis, D., Perach, R., Madrid-Valero, J. J., French C. C. and Gregory, A. 2023. Isolated Sleep Paralysis: Clinical Features, Perception of Aetiology, Prevention and Disruption Strategies in a Large International Sample. Sleep Medicine. 104, pp. 105-112. https://doi.org/10.1016/j.sleep.2023.02.023

Isolated sleep paralysis: Clinical features, perception of aetiology, prevention and disruption strategies in a large international sample
Rauf, B., Sharpless, Brian A., Denis, Dan, Perach, Rotem, Madrid-Valero, Juan J., French, Christopher C. and Gregory, Alice M. 2023. Isolated sleep paralysis: Clinical features, perception of aetiology, prevention and disruption strategies in a large international sample. Sleep Medicine. 104, pp. 105-112. https://doi.org/10.1016/j.sleep.2023.02.023

The associations between paranormal beliefs and sleep variables
Rauf, B., Perach, R., Madrid-Valero, J.J., Denis, D., Sharpless, B., Poerio, G.L., French, C.C. and Gregory, A.M. 2023. The associations between paranormal beliefs and sleep variables . Journal of Sleep Research. 32 (4) e13810. https://doi.org/10.1111/jsr.13810

‘Pushing back’: People newly diagnosed with dementia and their experiences of the Covid‐19 pandemic restrictions in England
Dixon, J., Hicks, B., Gridley, K., Perach, R., Baxter, K., Birks, Y., Colclough, C., Storey, B., Russell, A., Karim, A., Tipping, E., Banerjee, S. and on behalf of the DETERMIND team 2022. ‘Pushing back’: People newly diagnosed with dementia and their experiences of the Covid‐19 pandemic restrictions in England. International Journal of Geriatric Psychiatry. 37 (10), pp. 1-13. https://doi.org/10.1002/gps.5803

Predictors of loneliness during the Covid-19 pandemic in people with dementia and their carers in England: findings from the DETERMIND-C19 study
Perach, R., Read, S., Hicks, B., Harris, P.R., Rusted, J.M., Brayne, C., Dangoor, M., Miles, E., Dixon, J., Robinson, L., Thomas, A., Banerjee, S. and DETERMIND Team 2022. Predictors of loneliness during the Covid-19 pandemic in people with dementia and their carers in England: findings from the DETERMIND-C19 study. Aging & Mental Health. https://doi.org/10.1080/13607863.2022.2080179

Tracking the nature and trajectory of social support in Facebook mutual aid groups during the COVID-19 pandemic
Ntontis, E., Fernandes-Jesus, M., Mao, G., Dines, T., Kane, J., Karakaya, J., Perach, R., Cocking, C., McTague, M., Schwarz, A., Semlyen, J. and Drury, J. 2022. Tracking the nature and trajectory of social support in Facebook mutual aid groups during the COVID-19 pandemic. International Journal of Disaster Risk Reduction. 76 103043. https://doi.org/10.1016/j.ijdrr.2022.103043

A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers
Hicks, B., Read, S., Hu, B., Wittenberg, R., Grahamslaw, A., Karim, A., Martin, E., Nuzum, E., Reichental, J., Russell, A., Siddle, E., Storey, E., Tipping, E., Baxter, K., Birks, Y., Brayne, C., Brimblecombe, N., Dangoor, M., Dixon, J., Gridley, K., Harris, P.R., Knapp, M., Miles, E., Perach, R., Robinson, L., Rusted, J., Stewart, R., Thomas, A.J. and Banerjee, S. 2022. A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers. Alzheimer's & Dementia: Translational Research & Clinical Interventions. 8 (1) e12236. https://doi.org/10.1002/trc2.12236

Can culture beat Covid-19? Evidence that exposure to facemasks with cultural symbols increases solidarity
Perach, R. and Limbu, M. 2022. Can culture beat Covid-19? Evidence that exposure to facemasks with cultural symbols increases solidarity. British Journal of Social Psychology. 61 (3), pp. 991-1010. https://doi.org/10.1111/bjso.12521

Associations between tactile intimacy and sleep quality in healthy adults: A systematic review
Dueren, A.L., Perach, R., Banissy, J.F.M., Bowling, N.C., Gregory, A.M. and Banissy, M.J. 2022. Associations between tactile intimacy and sleep quality in healthy adults: A systematic review. Journal of Sleep Research. 31 (3) e13504. https://doi.org/10.1111/jsr.13504

Emotion regulation and decision-making in persons with dementia: A scoping review
Perach, R., Rusted, J., Harris, P.R., Miles, E. and for the DETERMIND team 2021. Emotion regulation and decision-making in persons with dementia: A scoping review. Dementia. 20 (5), pp. 1832-1854. https://doi.org/10.1177/1471301220971630

Association between symptoms of sleep apnea and problem behaviors in young adult twins and siblings
Madrid-Valero, J.J., Barclay, N.L., Rowe, R., Perach, R., Buysse, D.J., Ordoñana, J.R., Eley, T.C. and Gregory, A.M. 2021. Association between symptoms of sleep apnea and problem behaviors in young adult twins and siblings. Psychological Medicine. 51 (7), pp. 1175-1182. https://doi.org/10.1017/S0033291719004070

Exploding Head Syndrome: Clinical Features, Theories about Etiology, and Prevention Strategies in a Large International Sample
Sharpless, B.A., Denis, D., Perach, R., French, C.C. and Gregory, A.M. 2020. Exploding Head Syndrome: Clinical Features, Theories about Etiology, and Prevention Strategies in a Large International Sample. Sleep Medicine. 75, pp. 251-255. https://doi.org/10.1016/j.sleep.2020.05.043

DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): A protocol paper
Farina, N., Hicks, B., Baxter, K., Birks, Y., Brayne, C., Dangoor, M., Dixon, J., Harris, P.R., Hu, B., Knapp, M., Miles, E., Perach, R., Read, S., Robinson, L., Rusted, J., Stewart, R., Thomas, A., Wittenberg, R. and Banerjee, S. 2020. DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): A protocol paper. International Journal of Geriatric Psychiatry. 35 (3), pp. 290-301. https://doi.org/10.1002/gps.5246

The psychological wellbeing outcomes of nonpharmacological interventions for older persons with insomnia symptoms: A systematic review and meta-analysis
Perach, R., Allen, C.K., Kapantai, I., Madrid-Valero, J.J., Miles, E., Charlton, R.A. and Gregory, A.M. 2019. The psychological wellbeing outcomes of nonpharmacological interventions for older persons with insomnia symptoms: A systematic review and meta-analysis. Sleep Medicine Reviews. 43, pp. 1-13. https://doi.org/10.1016/j.smrv.2018.09.003

Can Creativity Beat Death? A Review and Evidence on the Existential Anxiety Buffering Functions of Creative Achievement
Perach, R. and Wisman, A. 2019. Can Creativity Beat Death? A Review and Evidence on the Existential Anxiety Buffering Functions of Creative Achievement. Journal of Creative Behavior. 53 (2), pp. 193-210. https://doi.org/10.1002/jocb.171

Telephone hotline for aging: Information needs, quality of service, and insights
Cohen-Mansfield, J., Perach, R., Stern, T.K., Albeck, S., Rotem, D., Arnow, T.L. and Lerman, Y. 2018. Telephone hotline for aging: Information needs, quality of service, and insights. International Social Work. 61 (5), pp. 681-691. https://doi.org/10.1177/0020872816651702

Interventions for Alleviating Loneliness Among Older Persons: A Critical Review
Cohen-Mansfield, J. and Perach, R. 2015. Interventions for Alleviating Loneliness Among Older Persons: A Critical Review. American Journal of Health Promotion. 29 (3), pp. e109-25. https://doi.org/10.4278/ajhp.130418-LIT-182

Sleep Duration, Nap Habits, and Mortality in Older Persons
Perach, R. and Cohen-Mansfield, J. 2012. Sleep Duration, Nap Habits, and Mortality in Older Persons. Sleep. 35 (7), p. 1003–1009. https://doi.org/10.5665/sleep.1970

Is there a reversal in the effect of obesity on mortality in old age?
Cohen-Mansfield, J. and Perach, R. 2011. Is there a reversal in the effect of obesity on mortality in old age? Journal of Aging Research. 2011 765071. https://doi.org/10.4061/2011/765071

Permalink - https://westminsterresearch.westminster.ac.uk/item/w45w3/using-digital-technologies-to-facilitate-social-inclusion-during-the-covid-19-pandemic-experiences-of-co-resident-and-non-co-resident-family-carers-of-people-with-dementia-from-determind-c19


Share this

Usage statistics

29 total views
9 total downloads
These values cover views and downloads from WestminsterResearch and are for the period from September 2nd 2018, when this repository was created.