Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic

Colclough, C., Miles, E., Rusted, J.M., Perach, R., Hicks, B., Dixon, J., Dangoor, M., Gridley, K., Birks, Y., Donaghy, P., Mcardle, R., Moseley, E., Sondh, H.K., Banerjee, S. and for the DETERMIND team 2023. Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic. Dementia. 22 (6), pp. 1205-1316. https://doi.org/10.1177/14713012231173812

TitleEmotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic
TypeJournal article
AuthorsColclough, C., Miles, E., Rusted, J.M., Perach, R., Hicks, B., Dixon, J., Dangoor, M., Gridley, K., Birks, Y., Donaghy, P., Mcardle, R., Moseley, E., Sondh, H.K., Banerjee, S. and for the DETERMIND team
Abstract

Emotional wellbeing of family carers and people with dementia is associated with not only how each individual copes with stress and conflict, but also by how they cope together. Finding ways to positively cope together was particularly important during COVID-19 lockdown restrictions, when other avenues of emotional support were less available. We explored how carers experienced and used emotion-focused dyadic coping styles during the COVID-19 pandemic. In-depth qualitative interviews were conducted during the pandemic with 42 family carers, supplemented by quality of life scores collected both pre- and during the pandemic and household status. Abductive thematic analysis identified five styles of emotion-focused dyadic coping: common, supportive, hostile, disengaged avoidance and protective. The COVID-19 pandemic left many dyads unsupported. While many carers adapted, reporting increases in quality of life and enjoying the extra time with the person with dementia, others experienced dyadic conflict and reductions in quality of life. This variation was associated with dyadic coping styles, including challenges in using ‘positive’ styles and the protective use of ‘negative’ disengaged avoidance in the right situations. Dyadic coping styles also differed as a function of whether the dyad lived together. As many people with dementia are supported by an informal carer, considering how they cope together could help us to better support them. We make suggestions for dyadic interventions tailored by co-residency status that could help dyads identify and communicate coping needs, reconnect following avoidance coping, and replenish their coping resources through social support.

Keywordsdementia
carer
dyadic coping
qualitative
COVID-19
JournalDementia
Journal citation22 (6), pp. 1205-1316
ISSN1471-3012
1741-2684
Year2023
PublisherSage
Publisher's version
License
CC BY 4.0
File Access Level
Open (open metadata and files)
Digital Object Identifier (DOI)https://doi.org/10.1177/14713012231173812
Publication dates
Published online05 May 2023
PublishedAug 2023

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